Because so few are effected by Cystinosis, there is little funding provided to the teams researching this disease.
It is through the Cystinosis Research Foundation, the friends and family of those that are effected, and other smaller organizations such as ourself, that the researchers and doctors are able to fund the work being done towards the goal of finding a cure.
Proceeds for Help Camden Find A Cure are donated to the Cystinosis Research Foundation where they are dispersed to the teams who are working on researching the disease. We try to keep between $2,000 - $3,000 dollars in our account at all times, so that we can pay the expenses that come with our fundraising, plus the costs of our entertainment. Help Camden Find A Cure is comprised mostly of volunteer workers, each hoping to make a difference in the lives of people who are affected by Cystinosis.
Together, we can make a difference.